They Are On Their Way....
12 hours ago
Sunday, February 19, 2012
Sunday, January 8, 2012
Sunday, January 1, 2012
Merry Christmas
Christmas 2011
One very Happy Little Boy
Our whole family together for Christmas
Cousin Jacob helping Gideon decorate Jesus Birthday cake
Celebrating with some special friends
Gideon with Santa Claus
One very Happy Little Boy
Our whole family together for Christmas
Cousin Jacob helping Gideon decorate Jesus Birthday cake
Celebrating with some special friends
Gideon with Santa Claus
Philadelphia Trip
December 19, 2011
Another trip to Philly. I think it is number 5. Anyway we flew through Detroit this time. It is a really cool airport with a tunnel that changes colors and plays music and a cool tram to ride. We stayed at the Ronald McDonald house in Camden again and this time had the Tie Dye room. We met up again with Anna and Fu Xia and made friends with Joe from Florida. Fu Xia has arthrogryposis like Gideon and Joe was a super nice teenager who had a spinal cord injury from a dirt bike accident a few years ago. Gideon loved hanging out with these 2 guys. Anna (Fu Xia's mom) was great company for me as well. The kids were given gifts at Shriners from the local NFL team-the Eagles. Our stay was once again made nice by all the volunteers and great families at the Ronald McDonald house. Gideon was measured for his braces and had casts put on again but this time below the knee. Much nicer. His feet look so nice and straight. Next visit is January-we leave on the 7th, he will have casts removed and braces placed on the 9th. We will be staying the week because Gideon will have surgery on his arm with Dr. Zlotlow on the 13th. We hope to go to the RMH on the 14th and then travel home on the 15th. Dr. Z will be doing a rotational humerus osteotomy on the Left arm and bringing his thumb up. This will turn his hand to face the right way and give him the ability to pinch with his thumb and forefinger. He will be in a cast for 4-6 weeks. Get rid of one cast and get another!
Look at those beautiful straight feet
Gideon and Fu Xia
Tunnel in Detroit Airport
Another trip to Philly. I think it is number 5. Anyway we flew through Detroit this time. It is a really cool airport with a tunnel that changes colors and plays music and a cool tram to ride. We stayed at the Ronald McDonald house in Camden again and this time had the Tie Dye room. We met up again with Anna and Fu Xia and made friends with Joe from Florida. Fu Xia has arthrogryposis like Gideon and Joe was a super nice teenager who had a spinal cord injury from a dirt bike accident a few years ago. Gideon loved hanging out with these 2 guys. Anna (Fu Xia's mom) was great company for me as well. The kids were given gifts at Shriners from the local NFL team-the Eagles. Our stay was once again made nice by all the volunteers and great families at the Ronald McDonald house. Gideon was measured for his braces and had casts put on again but this time below the knee. Much nicer. His feet look so nice and straight. Next visit is January-we leave on the 7th, he will have casts removed and braces placed on the 9th. We will be staying the week because Gideon will have surgery on his arm with Dr. Zlotlow on the 13th. We hope to go to the RMH on the 14th and then travel home on the 15th. Dr. Z will be doing a rotational humerus osteotomy on the Left arm and bringing his thumb up. This will turn his hand to face the right way and give him the ability to pinch with his thumb and forefinger. He will be in a cast for 4-6 weeks. Get rid of one cast and get another!
Look at those beautiful straight feet
Tie Dye Room
Gideon and Fu Xia
Tunnel in Detroit Airport
Monday, December 5, 2011
Pictures of our Dec 5th Philly trip
December 5th, 2011
Here are some pictures from our trip. The post in detail is below the pictures. Gideon is such a good little traveler and we have a great time on our trips except for the pain at the castings! I just love this little guy!
Mommy and Gideon in front of tree at RMH
Gideon's Christmas colored Casts!
Gideon Break dancing while the casts are off.
The Cat In The Hat Room!
Here are some pictures from our trip. The post in detail is below the pictures. Gideon is such a good little traveler and we have a great time on our trips except for the pain at the castings! I just love this little guy!
Mommy and Gideon in front of tree at RMH
Gideon's Christmas colored Casts!
Gideon Break dancing while the casts are off.
The Cat In The Hat Room!
Philadelphia Trip, Cast #5
December 5,2011
Wow, Casts #5. Maybe only 1-2 more to go. Last week Dr. VanBosse said we weren't even 1/2 way there but this week he said maybe 1-2 more. So next trip when the casts come off Gideon will be measured for his braces and then casts put back on. He will decide then if any more casts are needed. So that was good news. The bad part was once again the long wait. We arrived at 9:30am and did not get called back to a room until 1210pm. His casts were removed and we waited until 2:15 pm for Dr. VanBosse to come in. We had not had anything to eat since 7:30 am. The casts coming off were difficult again and Gideon cried through this. He did pretty good with the casts going back on with the right foot but the left foot he cried and cried big tears. He has a big open area on his big toe that is so sore. He is doing better tonight. Hopefully he will be able to sleep tonight. A little tylenol with codeine to help with that. We had good flights here, Cincinnati to Chicago and Chicago to Philly. A moderate amount of turbulence-I just hate that. Please pray for very smooth flights home for us tomorrow. We leave at 12:10 pm and fly into Chicago. The flight leaves there at 3:15 and we arrive in Cincinnati about 5:25pm. Another long day. I will post some pictures of our time here. The Ronald McDonald house is all decorated for Christmas and we did a lot of Christmas crafts. We even got to pick out some Christmas presents to take home. So we come back on December 18th for his Dec 19th appointment and then maybe 1 or 2 more times, until we schedule his first surgery. This is all very difficult but we just know we are doing the best we can for Gideon. Dr. VanBosse and Dr. Zlotlow are the best in their field for Arthrogryposis. With them Gideon has hope of becoming more independent and possibly walking.We know that God has brought us to these doctors and we will do all we can to be sure Gideon gets the care he needs. Gideon is such a little warrior. We always pray while we are on the plane and then thank God for the safe flight afterwards. He prays so sweetly. He knows that God goes with us everywhere we go and he will just start talking to him. He leaves an impression everywhere we go. He is such a joy to everyone he meets and we are so blessed to be his family.
Wow, Casts #5. Maybe only 1-2 more to go. Last week Dr. VanBosse said we weren't even 1/2 way there but this week he said maybe 1-2 more. So next trip when the casts come off Gideon will be measured for his braces and then casts put back on. He will decide then if any more casts are needed. So that was good news. The bad part was once again the long wait. We arrived at 9:30am and did not get called back to a room until 1210pm. His casts were removed and we waited until 2:15 pm for Dr. VanBosse to come in. We had not had anything to eat since 7:30 am. The casts coming off were difficult again and Gideon cried through this. He did pretty good with the casts going back on with the right foot but the left foot he cried and cried big tears. He has a big open area on his big toe that is so sore. He is doing better tonight. Hopefully he will be able to sleep tonight. A little tylenol with codeine to help with that. We had good flights here, Cincinnati to Chicago and Chicago to Philly. A moderate amount of turbulence-I just hate that. Please pray for very smooth flights home for us tomorrow. We leave at 12:10 pm and fly into Chicago. The flight leaves there at 3:15 and we arrive in Cincinnati about 5:25pm. Another long day. I will post some pictures of our time here. The Ronald McDonald house is all decorated for Christmas and we did a lot of Christmas crafts. We even got to pick out some Christmas presents to take home. So we come back on December 18th for his Dec 19th appointment and then maybe 1 or 2 more times, until we schedule his first surgery. This is all very difficult but we just know we are doing the best we can for Gideon. Dr. VanBosse and Dr. Zlotlow are the best in their field for Arthrogryposis. With them Gideon has hope of becoming more independent and possibly walking.We know that God has brought us to these doctors and we will do all we can to be sure Gideon gets the care he needs. Gideon is such a little warrior. We always pray while we are on the plane and then thank God for the safe flight afterwards. He prays so sweetly. He knows that God goes with us everywhere we go and he will just start talking to him. He leaves an impression everywhere we go. He is such a joy to everyone he meets and we are so blessed to be his family.
Sunday, November 6, 2011
Trip #2 to Philadelphia/Shriners
November 6,2011
We arrived yesterday in Philadelphia without any problems-thank you Jesus! Smooth flights all the way. We were able to fly in this time thanks to my very dear friends Shari and John-we love you guys and you will be blessed! Anyway we were able to get a room at the Ronald McDonald House (RMH) in Camden New Jersey where we stayed last time.This time we got a boys room-we are in the farm/tracker room. Though it is not in a very safe area it is really very nice here. We have met some very special people here again this time. We will be in prayer for sweet Emma, 4 years old and diagnosed with cancer. She is from England and she and her parents and older sister are here for the next 6 months to get her the treatment she needs that isn't available in England. We met Ricky who also has arthrogryposis like Gideon and he is from Ohio, between Cincinnati and Dayton, very close to us. Anyway today was a lazy day of just hanging out and getting to know some of the people here. Tomorrow we head to Shriners for Gideon's cast change and to see Dr. VanBosse again. We hope to get a better idea of the future trips and the upcoming surgeries. Below are some pics of the last 2 days. Will post more tomorrow after our visit at Shriners.
Gideon made some fun chocolate treats
We arrived yesterday in Philadelphia without any problems-thank you Jesus! Smooth flights all the way. We were able to fly in this time thanks to my very dear friends Shari and John-we love you guys and you will be blessed! Anyway we were able to get a room at the Ronald McDonald House (RMH) in Camden New Jersey where we stayed last time.This time we got a boys room-we are in the farm/tracker room. Though it is not in a very safe area it is really very nice here. We have met some very special people here again this time. We will be in prayer for sweet Emma, 4 years old and diagnosed with cancer. She is from England and she and her parents and older sister are here for the next 6 months to get her the treatment she needs that isn't available in England. We met Ricky who also has arthrogryposis like Gideon and he is from Ohio, between Cincinnati and Dayton, very close to us. Anyway today was a lazy day of just hanging out and getting to know some of the people here. Tomorrow we head to Shriners for Gideon's cast change and to see Dr. VanBosse again. We hope to get a better idea of the future trips and the upcoming surgeries. Below are some pics of the last 2 days. Will post more tomorrow after our visit at Shriners.
Gideon made some fun chocolate treats
Silly Gideon
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